Hi friends! Just a quick update ....
I have ramped up to the full dosage of Neuroreplete. I have seen a few good results from it. For one, my basal temperatures are more consistent. They used to jump around a lot, now they are more consistent from day to day. Secondly, I used to spot several days before menstruation, that has stopped completely. I thought it was due to age (I'm 46), apparently it was not. I believe I'm sleeping more soundly, but that's hard to tell, I'll let you know once I'm on the full dosage a couple weeks.
I also got muscle tested again, last time was last April and I was still testing positive for babs and bart .... and oddly enough lice?? Remember that?! Well, all three of those are clear now! For the first time I tested clear of all Lyme and coinfections!! Woohoo!!
My organs also tested as clear, but still had some heavy metal toxicity. Also tested positive for a fungal infection. I have a rash on my forehead that I had figured out was fungal, so I am guessing the rash is what showed up.
It seems I have regained my health!! I am currently taking KPU, iron, magnesium, Neuroreplete, and thyroid. I also take resveratrol, a good antioxidant.
To work on toxicity as it's an ongoing problem for everyone, I am taking saunas twice per week and doing coffee enemas the next morning. I notice when I wake up the morning after a sauna, my lymph system feels a bit sluggish. My massage therapist also noticed this during my last massage. I believe the saunas are pulling out a lot of toxins. I only go in for 30 min, any longer and I don't feel good. I plan on doing this protocol for a while .... until I feel I am no longer getting a benefit.
I hope this finds all of you well. Thanks for reading.
Saturday, January 23, 2010
Monday, December 14, 2009
Changed thyroid meds
My doctor has had me make the change to Nature Thyroid. I was taking a half grain NT with the Synthroid/Cytomel I was on already. He had me stop the Synthroid and go up to a whole grain of NT. I am taking my basal temperatures to monitor the change.
I also increased the dosage of the Neuroreplete. I tried increasing it last week, but the full, new dosage made me dizzy like I had been drinking or on drugs. I stopped immediately because my Pilates test out to become a teacher was last weekend and I needed my wits for it. Neuroreplete says if you are severely depleted in the amino acids, you will possibly feel dizzy, so that's apparently what happened with me.
I immediately bounced back to normal the next day after stopping the higher dosage, thankfully. I took 9 pilates classes (if you've ever done pilates, you know that is very difficult!!!) and taught 2 this weekend. Not only did I have the stress of doing all that exercise, I also had the stress of stage fright for teaching classes. I got certified, though I won't know what I'm cleared to teach until tomorrow when I find out the ongoing training plan. I'm already scheduled to teach a private lesson, so apparently I'm cleared to teach that!
Instead of jumping up four more pills of Replete Extra, I took one additional pill. I will ramp up over a few days or a week.
I also increased the dosage of the Neuroreplete. I tried increasing it last week, but the full, new dosage made me dizzy like I had been drinking or on drugs. I stopped immediately because my Pilates test out to become a teacher was last weekend and I needed my wits for it. Neuroreplete says if you are severely depleted in the amino acids, you will possibly feel dizzy, so that's apparently what happened with me.
I immediately bounced back to normal the next day after stopping the higher dosage, thankfully. I took 9 pilates classes (if you've ever done pilates, you know that is very difficult!!!) and taught 2 this weekend. Not only did I have the stress of doing all that exercise, I also had the stress of stage fright for teaching classes. I got certified, though I won't know what I'm cleared to teach until tomorrow when I find out the ongoing training plan. I'm already scheduled to teach a private lesson, so apparently I'm cleared to teach that!
Instead of jumping up four more pills of Replete Extra, I took one additional pill. I will ramp up over a few days or a week.
Wednesday, December 9, 2009
Question for my smart readers
Hi everyone! I had my follow-up appt. with the doctor today. He moved me onto the second stage of the Neuroreplete program, but that's not what I want to talk about.
It ends up IgG band 41 on a Quest Western Blot came back positive. My understanding has been that the Western Blot only shows antibodies, thus only shows exposure to Lyme but cannot determine whether the infection is gone or not .... just like I would test positive for chicken pox since I had it as a child even though I don't have it now.
I am feeling really good lately, as I have posted. I think my body is still healing and detoxing, but no real symptoms of anything. In fact, I think I actually am healthier and more energetic than my healthy husband. I can certainly keep up with my children.
My doctor, however, thinks that I should further treat the Lyme to get rid of it entirely because then I will feel better than I do. He says that because I need maintenance with the light, it shows that it's still not all gone or I would not need maintenance (I see it more as "relapse prevention"). He believes that any positive band shows you have Lyme (because band 41 could otherwise signify gingivitis or syphilis, which I don't have).
I also understand that Dr W in Germany says that the Lyme blood tests may still come up positive after his treatment even though the energetic tests are negative.
I'm kind of in a unique situation with this doctor ..... he thinks I'm sicker than I think I do .... it's the opposite of other doctors I've had! He also has lots of "gadgets" - glutathione IV, hyperbaric oxygen, rife, etc. - and he is in business ..... soooo ....
If you're a Facebook friend, please comment there, if not, I'd love to hear what you have to say here.
So, what are your thoughts? Does a positive Western Blot mean the Lyme is still active? Will the antibodies ever really clear out of the blood?
It ends up IgG band 41 on a Quest Western Blot came back positive. My understanding has been that the Western Blot only shows antibodies, thus only shows exposure to Lyme but cannot determine whether the infection is gone or not .... just like I would test positive for chicken pox since I had it as a child even though I don't have it now.
I am feeling really good lately, as I have posted. I think my body is still healing and detoxing, but no real symptoms of anything. In fact, I think I actually am healthier and more energetic than my healthy husband. I can certainly keep up with my children.
My doctor, however, thinks that I should further treat the Lyme to get rid of it entirely because then I will feel better than I do. He says that because I need maintenance with the light, it shows that it's still not all gone or I would not need maintenance (I see it more as "relapse prevention"). He believes that any positive band shows you have Lyme (because band 41 could otherwise signify gingivitis or syphilis, which I don't have).
I also understand that Dr W in Germany says that the Lyme blood tests may still come up positive after his treatment even though the energetic tests are negative.
I'm kind of in a unique situation with this doctor ..... he thinks I'm sicker than I think I do .... it's the opposite of other doctors I've had! He also has lots of "gadgets" - glutathione IV, hyperbaric oxygen, rife, etc. - and he is in business ..... soooo ....
If you're a Facebook friend, please comment there, if not, I'd love to hear what you have to say here.
So, what are your thoughts? Does a positive Western Blot mean the Lyme is still active? Will the antibodies ever really clear out of the blood?
Wednesday, December 2, 2009
Feel GREAT!!!
Oh my! I don't know if it's the amino acid program or the extra thyroid, but I feel GREAT! Very energetic and happy! I slept like a ROCK last night!
I woke up feeling a little stiff like I do when I'm toxic and I taste metals in my mouth, so I'm going to take some binders. Toxicity is an ongoing issue, so perhaps this will help.
Just thought I'd give you a quick update!
www.neuroreplete.com - amino acids
I woke up feeling a little stiff like I do when I'm toxic and I taste metals in my mouth, so I'm going to take some binders. Toxicity is an ongoing issue, so perhaps this will help.
Just thought I'd give you a quick update!
www.neuroreplete.com - amino acids
Monday, November 30, 2009
New doctor!!!
Today I had my first visit with my new doctor. I think this will work out, but partly because I don't really need much at this point.
He's an MD and also has a naturopath he works with at his office. He has lots of different tools - hyperbaric oxygen, neural therapy, ART, rife, etc. He prefers alternative modalities to conventional medical treatment. The conventional stuff, like thyroid, is covered by insurance.
I filled out the typical information about my history. I spoke to the nurse first, then he came in, read through it all and we talked. I told him my two issues were needing thyroid meds and needing 5HTP to sleep, which makes me believe there's some kind of residual hormonal problem. When I don't take the 5HTP, I don't sleep.
He is starting me on Nature's Thyroid. He was going to start me on Armour, but I asked for the other since the two people I know who take Armour BOTH have trouble with the new formulation. He wants me to start on it and as it builds up in my system to wean off my other thyroid meds starting with Cytomel, which shouldn't be too hard since I only take 5 mcg of it.
He also doesn't like supplementing with 5HTP alone, which is what I currently take for sleep. He says it makes it so the body gets used to having it from an external source and stops making it on its own. He has an amino acid program he uses to get the body back in balance. You start it in three stages, so I'm starting the first stage tonight, then it lasts for six months. Interestingly, it does have 5HTP, so I guess I don't need to take mine. It's very similar to what I was taking, but has two other amino acids in it. www.neuroreplete.com
I go back in a week for a follow-up on the amino acids.
He took blood to test my thyroid for antibodies since I've never been tested for that as far as I know. He also did a LYME TEST!!! He used Quest, but we'll see, this should be interesting. I'm not going to pay for IGeneX, which is what he uses if Quest comes back negative because I don't see the point in retesting. The Western Blot proves exposure, but not level of illness. We know from my 8 + bands on my previous WB that I've been exposed. Since I'm symptom-free, I don't need treatment. But, it was no out of pocket for me for Quest, so I had no problem agreeing to it since they were taking blood anyway .... except I don't really want to know if Lyme is still there. Dr. W in Germany says it can still be there, it's just no longer stressing the body so it doesn't matter that it's there, much in the same way we still carry the chicken pox virus or some other illness with no symptoms.
Normally, he has patients set up an appt. with the naturopath to go over all his recommendations and possible treatments. He gave me a booklet with the ones he recommends for me. I know what all these treatments are, so I'm going to see if next time I can just find out what his ideas are as far as prioritizing. I can't say I'm going to do them all or any of them aside from taking basal temps for thyroid. I'm just feeling too well to shell out the dough for unnecessary treatment.
He says he pretty much does what the patient wants .... the patient meets with the naturopath to go over his recommendations and get any questions answered, then the patient decides what to have done. This is really exactly what I need for a PCP - one who understands a bit about Lyme (he does have a Lyme protocol), one who accepts that I treat with the Bionic 880 (he asked if it was biophotons, so he's even a bit familiar with it), and one who isn't ridiculing me like the last doctor I fired.
If I think of more, I'll add it later .... going to go watch House now. :) Have a great evening! Thanks for reading!
He's an MD and also has a naturopath he works with at his office. He has lots of different tools - hyperbaric oxygen, neural therapy, ART, rife, etc. He prefers alternative modalities to conventional medical treatment. The conventional stuff, like thyroid, is covered by insurance.
I filled out the typical information about my history. I spoke to the nurse first, then he came in, read through it all and we talked. I told him my two issues were needing thyroid meds and needing 5HTP to sleep, which makes me believe there's some kind of residual hormonal problem. When I don't take the 5HTP, I don't sleep.
He is starting me on Nature's Thyroid. He was going to start me on Armour, but I asked for the other since the two people I know who take Armour BOTH have trouble with the new formulation. He wants me to start on it and as it builds up in my system to wean off my other thyroid meds starting with Cytomel, which shouldn't be too hard since I only take 5 mcg of it.
He also doesn't like supplementing with 5HTP alone, which is what I currently take for sleep. He says it makes it so the body gets used to having it from an external source and stops making it on its own. He has an amino acid program he uses to get the body back in balance. You start it in three stages, so I'm starting the first stage tonight, then it lasts for six months. Interestingly, it does have 5HTP, so I guess I don't need to take mine. It's very similar to what I was taking, but has two other amino acids in it. www.neuroreplete.com
I go back in a week for a follow-up on the amino acids.
He took blood to test my thyroid for antibodies since I've never been tested for that as far as I know. He also did a LYME TEST!!! He used Quest, but we'll see, this should be interesting. I'm not going to pay for IGeneX, which is what he uses if Quest comes back negative because I don't see the point in retesting. The Western Blot proves exposure, but not level of illness. We know from my 8 + bands on my previous WB that I've been exposed. Since I'm symptom-free, I don't need treatment. But, it was no out of pocket for me for Quest, so I had no problem agreeing to it since they were taking blood anyway .... except I don't really want to know if Lyme is still there. Dr. W in Germany says it can still be there, it's just no longer stressing the body so it doesn't matter that it's there, much in the same way we still carry the chicken pox virus or some other illness with no symptoms.
Normally, he has patients set up an appt. with the naturopath to go over all his recommendations and possible treatments. He gave me a booklet with the ones he recommends for me. I know what all these treatments are, so I'm going to see if next time I can just find out what his ideas are as far as prioritizing. I can't say I'm going to do them all or any of them aside from taking basal temps for thyroid. I'm just feeling too well to shell out the dough for unnecessary treatment.
He says he pretty much does what the patient wants .... the patient meets with the naturopath to go over his recommendations and get any questions answered, then the patient decides what to have done. This is really exactly what I need for a PCP - one who understands a bit about Lyme (he does have a Lyme protocol), one who accepts that I treat with the Bionic 880 (he asked if it was biophotons, so he's even a bit familiar with it), and one who isn't ridiculing me like the last doctor I fired.
If I think of more, I'll add it later .... going to go watch House now. :) Have a great evening! Thanks for reading!
Sunday, November 22, 2009
Happy Thanksgiving!
Sorry I haven't posted in a long time! I haven't really had much to say. Things are still going well.
I liked the Dr. Natura cleanse and think I had a lot of benefits from it. I felt good consistently the whole time on it. Since I had ups and downs before, I think that it really helped with the toxins. I don't really have ups and downs anymore, I feel good pretty consistently now.
I'm still making kefir and kombucha regularly. I still have jars from my last batch of sauerkraut, so have not had to make it recently. I haven't had to even think about my digestion, so I believe these products have been a help. Pyroluria also causes digestive problems, so I'm sure being on the KPU protocol has helped with my GI issues, too.
I have an appt. with my new doctor Nov. 30, so I will update you again after that.
Pilates training is going very well. I've consistently worked out 5-9 hours per week since I started back in Sept. I did take a couple days off one week and was concerned that I might have been fatigued because of the Lyme coming back, but then I mentioned it to the other teacher trainees (who are also much YOUNGER than me!) and the ones working out as much as me also had to take a break that week.
My non-Lymie daughter and I are fighting a cold, but other than that, I've been feeling really well.
Thanks for checking in! I'll write again after my doctor's appt. Have a very blessed Thanksgiving!!
I liked the Dr. Natura cleanse and think I had a lot of benefits from it. I felt good consistently the whole time on it. Since I had ups and downs before, I think that it really helped with the toxins. I don't really have ups and downs anymore, I feel good pretty consistently now.
I'm still making kefir and kombucha regularly. I still have jars from my last batch of sauerkraut, so have not had to make it recently. I haven't had to even think about my digestion, so I believe these products have been a help. Pyroluria also causes digestive problems, so I'm sure being on the KPU protocol has helped with my GI issues, too.
I have an appt. with my new doctor Nov. 30, so I will update you again after that.
Pilates training is going very well. I've consistently worked out 5-9 hours per week since I started back in Sept. I did take a couple days off one week and was concerned that I might have been fatigued because of the Lyme coming back, but then I mentioned it to the other teacher trainees (who are also much YOUNGER than me!) and the ones working out as much as me also had to take a break that week.
My non-Lymie daughter and I are fighting a cold, but other than that, I've been feeling really well.
Thanks for checking in! I'll write again after my doctor's appt. Have a very blessed Thanksgiving!!
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